Friday, March 28, 2014

at least it's friday.... ?

it's been an interesting week.

i'm still off my rheumatoid disease meds - no methotrexate (chemo), no enbrel.  of course, it was time to switch from enbrel to humira anyway.  this last week the pain and fatigue have REALLY caught up with me.  very upsetting.

last friday night was the billy joel concert - so much fun!  awesome husband @_antgas and i had a great time.  billy played some old songs that don't get played that much.  taking a cue from @_antgas, i used my iPhone to note the set list so i'll always remember what i've heard live.  this was my ninth time seeing him though (i think.  it sounds about right) sooooooo there's a lot missing from what i've seen played live.

i took a few photos too.  our seats were right behind the stage in the 300 section, which is this weird bridge thing.  we were in the front row and it was great - no one in front of me.  i was able to sit the entire show and still see, and the sound was still great.

our view of the stage before the concert

yay! billy!

billy's piano spins.

on the train to the city, there were two couples pregaming the billy joel concert on the train (yes, this is long island).  we were going through the valley stream station and one of the girls goes, 'this is where i used to live, valley stream.... suffolk is so white trash'.  if you're from long island, you'll see why this was HYSTERICAL coming from a woman pregaming billy joel on the train drinking miller lite out of a can.... hysterical.

we missed the train on the way home.  damn it.  we caught the first train from penn station into babylon, where we had to transfer, but we missed the transfer by a couple of minutes.  stupid.  so we had an hour to kill at 12:30 in the morning, which meant listening to what i suspect was a homeless woman cough like she was dying while smoking cigarettes and watching drunk people (some of whom were wearing really high heels) run up and down the escalators, since of course they weren't working.

when we got on the train home, a group of kids (probably mid-twenties.  that's how you know you're old, when you refer to 20-somethings as 'kids') stumbled up with the conductor right on their heels yelling at them about delaying the train.  apparently one of the kids leaned out the door to light and smoke a cigarette while we were stopped at a station.... um, really?  once the conductor walked away, the guys were SUCH DOUCHECANOES.  so bad.

i slept late on saturday and we took it pretty easy all weekend.  but i was still tired on monday - fell back asleep and took a nap in the afternoon.  same on wednesday - tuesday and thursday i interned and did alright.  but today i turned off my alarm and fell back asleep - for two hours!  i had to rush to get ready to go to my therapist appointment.  which was emotional enough itself, of course.

piglet's maintaing.  sort of.  it's been about 6 weeks since we noticed piglet's tooth injury.  we knew it would probably have to come out; the vet said it would probably die so i was watching for that.  in early march, her tooth started to look a little worse, so i called the vet to have it extracted.  that's when they found out her kidneys were failing - pre-surgery blood work.  i've been going back and forth and trying to talk through what's happening and what our options are.  that was three weeks ago today, and on wednesday i realized her tooth was looking really bad - it's like it's completely covered by the gums (it's a canine tooth).  shit.  so i called the vet and told them and was like, i can't wait any longer.  we need more bloodwork to see if she's improved at all with her modified diet.  that tooth needs to come out, and we can't do that unless her kidneys improve.  she's been on antibiotics this entire time and her tooth has only gotten worse.  but the vet thought maybe her numbers were so bad because she had a kidney infection - if that was the case, her numbers should have improved... right?  ugh.

oh, and i never did get my tattoo touch up.  i still felt too poorly on my appointment day to go in and get it done.  i'm planning on starting my chemo again tonight or tomorrow and the humira is being delivered tomorrow.  i have to decide when i'm starting that.  hopefully soon because everything hurts.

after the vet tomorrow, we have a pretty relaxing weekend lined up.  hanging out with friends tomorrow night and just cleaning and laundry the rest of the time.  i hope that my meds will start doing their shit soon enough and then i'll feel GREAT!  right? ;)

me and piglet <3 i="">

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